Last night, as I sat
in the darkness on the stiff couch of the hospital room, my focus was drawn to
the bed where he lay. He had drifted off into a drugged fog. I sat with the
energy of the last few days passing before me as my heart and mind settled into
this place of surreal images and sudden quiet.
The mechanical bed
became a ship on the night horizon. Running lights glowed as his slumbering
form morphed into a breathing superstructure that guided the bed through
troubled and painful waters. His destination is a far away shore that for now
we can only yearn for.
That though, is
another day. For now we seek rest from the trials of the present. We stand
before the steady headwind leaning into our faith in the knowledge that God is
with us. He captains this vessel that carries my son into a deep and darkened
sea.
As I wept, I observed the silhouettes of the space about me.
They will be forever in my mind’s eye as a place of passage carrying us forth
into hope. Yes … there is mostly hope that we will emerge from these ghostly
shadows into a light of balmy day where my son will walk in glorious grace to a
future of light and joy.
So as that ship of pain passed slowly before me, through
waters of foreboding and fear, I sat breathing oh so carefully so that the devils
of despair not hear us passing by.
And now we have emerged into morning. Shadows are
illuminated. The IV pump drones endlessly as it did in the deafening dark like
a dreadful buoy signaling disastrous shoals. Now it is a heartbeat.
Living in this unfair place where children suffer is like
unto “purgatory”. It is an in-between place that would rob us of our humanity.
Yet I find in the eyes and posture of their loved ones a dreary hope that one
day this will all pass away. One day that small figure resting in a fog upon
their ship of pain will arise to play and groan no more.
Last night I watched his ship in the fog pass that tolling
buoy of pain. This morning he smiled as we entered, for a little while, safer
harbor.
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